{"id":492,"date":"2025-08-22T09:09:58","date_gmt":"2025-08-22T07:09:58","guid":{"rendered":"https:\/\/www.michaeliterlumine.org\/?page_id=492"},"modified":"2025-08-23T12:06:03","modified_gmt":"2025-08-23T10:06:03","slug":"matyas","status":"publish","type":"page","link":"https:\/\/www.michaeliterlumine.org\/?page_id=492","title":{"rendered":"Maty\u00e1\u0161"},"content":{"rendered":"\t\t
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Maty\u00e1\u0161\u016fv p\u0159\u00edb\u011bh<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Maty je jeden\u00e1ctilet\u00fd kluk s obrovskou chut\u00ed do \u017eivota.
Narodil se ale s v\u00e1\u017en\u00fdm onemocn\u011bn\u00edm, kter\u00e9 ovliv\u0148uje ka\u017ed\u00fd jeho den.<\/p>

M\u00e1 poruchu v\u00fdvoje hypof\u00fdzy \u2013 \u010d\u00e1sti mozku, kter\u00e1 \u0159\u00edd\u00ed tvorbu d\u016fle\u017eit\u00fdch hormon\u016f. Chyb\u00ed mu nap\u0159\u00edklad hormon ADH, bez kter\u00e9ho t\u011blo nedok\u00e1\u017ee spr\u00e1vn\u011b hospoda\u0159it s vodou. L\u00e9\u010dba je slo\u017eit\u00e1 \u2013 rodi\u010de mus\u00ed pe\u010dliv\u011b hl\u00eddat p\u0159\u00edjem a v\u00fddej tekutin, aby nedo\u0161lo k dehydrataci nebo otoku mozku.<\/p>

K tomu v\u0161emu Maty trp\u00ed d\u011btskou mozkovou obrnou (DMO)<\/strong>. Svaly m\u00e1 oslaben\u00e9, pohyb je pro n\u011bj nesm\u00edrn\u011b n\u00e1ro\u010dn\u00fd a koordinace slo\u017eit\u00e1. P\u0159id\u00e1v\u00e1 se tak\u00e9 diabetes insipidus, vedlej\u0161\u00ed \u00fa\u010dinky l\u00e9\u010dby v podob\u011b extr\u00e9mn\u00ed obezity, vysok\u00fd krevn\u00ed tlak, astma, alergie i sp\u00e1nkov\u00e1 apnoe.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Nejv\u011bt\u0161\u00ed p\u0159ek\u00e1\u017ekou je ale jeho zrak<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Maty m\u00e1 t\u011b\u017ek\u00e9 zrakov\u00e9 posti\u017een\u00ed \u2013 atypick\u00e9 zrakov\u00e9 nervy.
Nevn\u00edm\u00e1 detaily, nevid\u00ed prostorov\u011b, rozezn\u00e1v\u00e1 jen sv\u011btlo a barevn\u00e9 kontrasty.
Pro d\u00edt\u011b, kter\u00e9 m\u00e1 pot\u00ed\u017ee s rovnov\u00e1hou, je p\u0159itom zrak obrovskou oporou. Maty ji ale nem\u00e1. Ka\u017ed\u00fd krok je pro n\u011bj mnohon\u00e1sobn\u011b t\u011b\u017e\u0161\u00ed ne\u017e pro zdrav\u00e9 d\u00edt\u011b.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Speci\u00e1ln\u00ed ort\u00e9zy dr\u017e\u00ed Matyho na nohou<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Dnes zvl\u00e1dne uj\u00edt jen p\u00e1r krok\u016f \u2013 a to jen s pomoc\u00ed a d\u00edky speci\u00e1ln\u00edm ort\u00e9z\u00e1m zna\u010dky P\u00f6hling<\/strong>. Ty stabilizuj\u00ed jeho nohy, kter\u00e9 trp\u00ed deformacemi. Bez nich je odk\u00e1zan\u00fd na invalidn\u00ed voz\u00edk.<\/p>

A p\u0159esto m\u00e1 Maty obrovskou radost ze \u017eivota.
Miluje hudbu, hraje na klav\u00edr, bav\u00ed ho ciz\u00ed jazyky a r\u00e1d plave. Jen jedinou v\u011bc s\u00e1m nezvl\u00e1dne \u2013 pohyb.<\/p>

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Rodina, kter\u00e1 se nevzd\u00e1v\u00e1<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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O Matyho pe\u010duj\u00ed rodi\u010de Eva a Ale\u0161. Krom\u011b n\u011bj se staraj\u00ed i o mlad\u0161\u00ed Ani\u010dku, kter\u00e1 m\u00e1 tak\u00e9 probl\u00e9my s pohybov\u00fdm apar\u00e1tem a pot\u0159ebuje pravidelnou rehabilitaci. P\u00e9\u010de o ob\u011b d\u011bti je pro rodi\u010de fyzicky i psychicky nesm\u00edrn\u011b n\u00e1ro\u010dn\u00e1, ale zvl\u00e1daj\u00ed ji s odvahou a l\u00e1skou.<\/p>

Rodina na\u0161la oporu i v dal\u0161\u00edch rodi\u010d\u00edch, kte\u0159\u00ed \u0159e\u0161\u00ed podobn\u00e9 osudy. Spole\u010dn\u011b tr\u00e1v\u00ed l\u00e1ze\u0148sk\u00e9 pobyty, kde se d\u011bti i jejich rodi\u010de vz\u00e1jemn\u011b podporuj\u00ed.<\/p>

\u00a0<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Jak m\u016f\u017eete pomoci?<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Prost\u0159edky, kter\u00e9 se poda\u0159\u00ed z\u00edskat, p\u016fjdou na:<\/p>

  • speci\u00e1ln\u00ed fyzioterapie,<\/p><\/li>

  • n\u00e1kup ort\u00e9z a rehabilita\u010dn\u00edch pom\u016fcek,<\/p><\/li>

  • podporu pohybu a lep\u0161\u00ed kvalitu \u017eivota Matyho i jeho sest\u0159i\u010dky.<\/p><\/li><\/ul>

    Ka\u017ed\u00fd p\u0159\u00edsp\u011bvek, mal\u00fd i velk\u00fd, pom\u016f\u017ee Matymu z\u016fstat v pohybu \u2013 a p\u0159ibl\u00ed\u017e\u00ed jeho d\u011btsk\u00e9 sny skute\u010dnosti.<\/p>

    \ud83d\udc49 Podpo\u0159te Matyho a jeho rodinu \u2013 proto\u017ee ka\u017ed\u00fd krok se po\u010d\u00edt\u00e1.<\/strong><\/p>

    CZK\u00a0<\/strong>Michael Iter Lumina C.i.c.<\/span><\/p>

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    GBP\u00a0<\/b>Michael Iter Lumina C.i.c.<\/span><\/p>

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    Maty\u00e1\u0161\u016fv p\u0159\u00edb\u011bh Maty je jeden\u00e1ctilet\u00fd kluk s obrovskou chut\u00ed do \u017eivota.Narodil se ale s v\u00e1\u017en\u00fdm onemocn\u011bn\u00edm, kter\u00e9 ovliv\u0148uje ka\u017ed\u00fd jeho […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"site-sidebar-layout":"no-sidebar","site-content-layout":"","ast-site-content-layout":"full-width-container","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"disabled","ast-breadcrumbs-content":"","ast-featured-img":"disabled","footer-sml-layout":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"class_list":["post-492","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.michaeliterlumine.org\/index.php?rest_route=\/wp\/v2\/pages\/492","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.michaeliterlumine.org\/index.php?rest_route=\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.michaeliterlumine.org\/index.php?rest_route=\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.michaeliterlumine.org\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.michaeliterlumine.org\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=492"}],"version-history":[{"count":11,"href":"https:\/\/www.michaeliterlumine.org\/index.php?rest_route=\/wp\/v2\/pages\/492\/revisions"}],"predecessor-version":[{"id":521,"href":"https:\/\/www.michaeliterlumine.org\/index.php?rest_route=\/wp\/v2\/pages\/492\/revisions\/521"}],"wp:attachment":[{"href":"https:\/\/www.michaeliterlumine.org\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=492"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}